In the Passenger Seat of Life

So I know this girl…she’s beautiful, smart and a real force of nature when she wants to be. She is my fiance, April. I wanted to mention how important it is to have people that care about you that are willing to be there and help in the darkest of times. This girl has done that and so much more. She does it so often that she probably doesn’t realize it anymore. There are times when I feel guilty that she has to live the life I do…that we can’t go out without planning extensively, that most of our date nights involve a movie at home…that I haven’t even been able to show her my hometown. Yet there she is. That is love my friends.

I’ve seen stories of other people who have my disorder, or one like it, and they too have life passengers who are there to make things as normal as they possibly can be. Or…if things can’t be normal they’re just there to make it known how much someone still loves them. On the other hand I have seen some seriously heart-breaking stories of people who have lost support because they couldn’t ‘handle it’ anymore. To those people, I can’t imagine the pain of having to mentally handle what you’re going through and then to lose those who were helping support you. Without April, I would be truly lost. Just know that there is ALWAYS someone somewhere willing to give you that love, maybe you haven’t even met them yet. Never, ever underestimate how much a conversation, visit or gift can mean to those that are struggling.

There is no way for me to explain the amount of support and love April has given me. I can see the weariness in her eyes some days, but those same eyes glisten whether I’ve had a good day or not. Most of all, she is always there, even in the middle of the night at a hospital.

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One thought on “In the Passenger Seat of Life

  1. I understand and completely “feel you.” It’s been 20 yrs since my dx but I still have so much support from Hubby and family. I’m so grateful for carrying items (more than 8 lbs) I can no longer carry or picking up takeout dinner, etc bc I can’t do whatever. Often our dates also revolve around last minute and ltd time activities (eating out, mall shopping in an electric cart, etc) bc I never know how I will feel on a given day. I push him to go out and enjoy activities instead of limiting/dumbing down his life to my level. He should enjoy life as fully as he can. I will do so as well and be glad for the abilities I have.

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